For family members of AD patients, ecspecially if hands-on care is being given, the level of personal stress can start to rise….coping with work, family stress and the need for a personal time-out can become overwhelming…
People, who are caring for their ailing parent at home, need to have a chance to re-charge their own batteries of energy, in order to stay healthy and happy themselves….
But can they get away from the situation long enough to do that?
Sometimes a spouse or son or daughter can be at home with the person who has AD, whilst they are away working or shopping… Or their short time out of the house coincides with the visit of a home-visiting care person.
In many families, however, there aren’t enough people around to cover up this need….
In our work contracts, the need for vacation time every year is an accepted fact, because it’s well-known that we humans need a lengthy time-out from our performance routine every now and then.
But in our families, when illness strikes, it’s understandable that we want to be there for our loved-one as mich as possible, even at the risk of our own well-being, over time.
It’s just our nature as family members.
It’s a beautiful thing, but like all such things, it comes with a price…
If your loved-one is still well enough to live in their home surroundings, but no longer able to live safely alone, you find yourself in a position of responsibility with no ultimate boundaries and no formula for taking a longer rest from the necessary accompanying of them.
Maybe you’re one of the lucky ones who has a brother or sister in town, or within driving distance, who can come and help you out. Maybe a son or daughter, cousin or friend. You might even have someone to sit in if you need a vacation.
Or something can be arranged with a neighbor or an externally employed care person.
But in many families, this won’t, or only rarely will happen.
They need another solution.
Fortunately, most care homes I know of, have a form of housing facility for temporary or day patients.
It’s advisable to find such opportunities in your city, state or province, and find out what is possible to arrange, and how the cost and coverage situation would present itself.
It is actually best of all if families think of these eventualities as soon as possible after someone’s been diagnosed with AD, naturally, after the difficult adaptation’s been absorbed somewhat…
That makes long-term planning much easier, and when the reality of daily presence and supervision has come, the spouse or child of the AD patient can be more certain to be able to live in a normal way themselves.
Alzheimer charities and organizations, of which a few are listed in the resources section of this site, are more than happy to help and advise you.
They also provide assistance and connect you to hands-on help of high attention quality.
There are usually chapters in your area which they can connect you with. Some hospitals, if not most, will also be able to connect you with special services provided in the community or they themselves will have solutions.
DO check with the treating physician about what he/she would recommend.
If you’ve found an out-of-home vacation solution for your loved-one, you might want to arrange to make a visit to the place together, so you can get a feel for how this solution would satisfy all concerned…..
You have in your favor, care people who are used to helping a person adapt to a new envirnoment, ecspecially at difficult times, such as waking up in the morning, in a strange place, or suddenly eating in a dining area, instead of at their own kitchen table.
Or waking up in a comfortable, but different bed in a room they don’t recognize.
I hope these words will be able to help people responsible for caring for an ailing spouse, father, mother or sibling with Alzheimer’s disease, who are in a situation of increasing tiredness and need some time away….
A point I consider to be important, is that families and friends of AD patients have the opportunity to come together and exchange experiences…getting “a load off their minds”, through the advantage of dialogue and communication with others who are going through the various stages of this selfsame experience.
This site is still in its youth as I write this, many ideas are circling round in my mind, not the least of which is a live chat…..
If you, my respected reader, have an idea you consider should be looked at, please feel free to express this in the comments section below….
Thank you very much for your visit and interest,